Your health data are not our business
As a physicians led project, in Keyose our main compromise is with the confidentiality of your data. We must follow the Geneve declaration of the World Medical Association that says: “I will respect the secrets that are confided in me, even after the patient has died.”
Although some capital venture has suggested us to monetize the information we store in our database (by selling aggregated data to third parties, as other PHR projects are probably planning to do) we have rejected that possibility, as incompatible with our total commitment with patients (we like to say patients and not just users).
We have updated our Privacy policy to state clearly our position:
Keyose will never provide third parties with any data, individualized or aggregated without the consent of each individual user. Each potential data transfer to third parties will require a new informed consent signature.
In the future Keyose could generate aggregated statistics based in data provided by users that had signed a specific informed consent. This statistics could be useful to allow Keyose users to compare their clinical advances with the rest of users. Also, this aggregated statistics could be provided to the general public and biomedical researchers for public interest, again after the sign of a specific informed consent for that purpose. However Keyose will never charge for or monetize these aggregated statistics.