Keyose Blog - Personal Health Records

I love to read emails from real patients that find benefits from Keyose tool. We have received an email from John’s father (fictional name), a 10 years old child that unfortunately suffers from Primary Hyperoxaluria.

Primary Hyperoxaluria is a congenit disease of genetic origin. Due to a problem in the metabolism the patients have high levels of oxalic acid in urine. This leads to the formation of renal calculus and finally the early loss of both kidneys. In the long time deposits of oxalic acid are formed in other body parts as liver and heart producing added problems.

Unfortunately the Juan’s disease has not known treatment, although somethings have been proved (as B6 vitamin or double liver-kidney transplant) with variable results.

Moreover it is a rare disease in the world, so Juan must be visited by different specialists and sometimes travel to be treated by doctors from other countries.

Juan’s parents have found in Keyose a way to store the most relevant data of their son’s medical record and a way to support the job of his doctors.

They have asked us to improve Keyose so they can add some images (as X-rays or CTs) that are so important in the management of a chronic and complex disease as the Juan’s one.

We are currently working on, in order to improve the quality of live of Juan and his family. These are the things that give a sense to this project!

We would like to thank Juan’s family for their support and their permission to comment his case on the Keyose blog.