Keyose Blog - Personal Health Records

All about Personal Health Records

Posts Tagged ‘children’

How to build a Keyose record for my children?

Sunday, December 30th, 2007

Having a Personal Health Record of your children in Keyose is a great idea. As Larissa Hirsch states in this website when a child is ill or injured and requires emergency care, doctors, nurses, and paramedics will have many questions about his or her medical history. And even the most organized parent might not be able to remember the details of a child’s health history in a stressful situation. That’s why it’s important to keep a comprehensive record of your child’s health information nearby. In many cases, this information can help a medical professional make quicker diagnoses and decisions during an emergency, when each second counts.

The site contains several tips about how to write a useful Personal Health Record for your children. And Keyose is a perfect tool to do it easily.

If you decide to have the Personal Health Records of your children in Keyose probably you will have several keyose cards, and as those cards are anonimous, sometimes you will find difficult to know which card belongs to each child.

We recommend you to personalize the card (putting just the name of your child for example), by clicking in the are of allergies before printing it. Remember that the information you write in the card will not be stored in Keyose databases, so privacity is guaranteed.

Case report #2: A Keyose’s family

Saturday, December 22nd, 2007

It’s Christmas time; the family time. So I am specially glad to know the case of a grandfather that has decided to sign up all his family (including his grandchildren) in Keyose.

The ages of life where we need more healthcare, and the help of our caregivers to manage our clinical information, are the first years (a fundamental time for our physical and mental development) and the old age. Who will take care of us better than our closer relatives?

In that sense we like a lot the idea of parents being able to use Keyose for the management of the personal health records (vaccines, height and weight and so on) of their children. We are working on that way rigth now.

We send a warn greeting to the first Keyose family!

Case report #1: The child with hyperoxaluria

Tuesday, December 18th, 2007

I love to read emails from real patients that find benefits from Keyose tool. We have received an email from John’s father (fictional name), a 10 years old child that unfortunately suffers from Primary Hyperoxaluria.

Primary Hyperoxaluria is a congenit disease of genetic origin. Due to a problem in the metabolism the patients have high levels of oxalic acid in urine. This leads to the formation of renal calculus and finally the early loss of both kidneys. In the long time deposits of oxalic acid are formed in other body parts as liver and heart producing added problems.

Unfortunately the Juan’s disease has not known treatment, although somethings have been proved (as B6 vitamin or double liver-kidney transplant) with variable results.

Moreover it is a rare disease in the world, so Juan must be visited by different specialists and sometimes travel to be treated by doctors from other countries.

Juan’s parents have found in Keyose a way to store the most relevant data of their son’s medical record and a way to support the job of his doctors.

They have asked us to improve Keyose so they can add some images (as X-rays or CTs) that are so important in the management of a chronic and complex disease as the Juan’s one.

We are currently working on, in order to improve the quality of live of Juan and his family. These are the things that give a sense to this project!

We would like to thank Juan’s family for their support and their permission to comment his case on the Keyose blog.