Keyose Blog - Personal Health Records

Because PHRs store sensitive personal health data, it is critical to develop reliable and trustworthy mechanisms to ascertain the identity of anyone accessing the information. Health information has several characteristics that make it even more sensitive than similar access to bank accounts and lines of credit, because someone who loses money through inappropriate access can be made financially whole. Someone who loses control of sensitive health data, by contrast, can never arrange to have that information returned to a purely private sphere. From Connecting for Health

As a physicians led project, in Keyose our main compromise is with the confidentiality of your data.  We must follow the Geneve declaration of the World Medical Association that says: “I will respect the secrets that are confided in me, even after the patient has died.”

Although some capital venture has suggested us to monetize the information we store in our database (by selling aggregated data to third parties, as other PHR projects are probably planning to do) we have rejected that possibility, as incompatible with our total commitment with patients (we like to say patients and not just users).

We have updated our Privacy policy to state clearly our position:

Keyose will never provide third parties with any data, individualized or aggregated without the consent of each individual user. Each potential data transfer to third parties will require a new informed consent signature.

In the future Keyose could generate aggregated statistics based in data provided by users that had signed a specific informed consent. This statistics could be useful to allow Keyose users to compare their clinical advances with the rest of users. Also, this aggregated statistics could be provided to the general public and biomedical researchers for public interest, again after the sign of a specific informed consent for that purpose. However Keyose will never charge for or monetize these aggregated statistics.

After listening the requirements and suggestions of our users, we are glad to release the version 1.0 of keyose service. We keep the core of Keyose (the easy to use so useful brief medical record) but adding a lot of new functionalities:

• You can upload medical images (radiology tests, photos, digitalized documents…)
• You can track at home (or by mobile phone) a new set of conditions (your blood pressure for hypertension, your sugar blood for diabetes and your weight and body mass index to prevent obesity or track the growth of your children)
• You can even pose any medical question to a family physician (Dr Julio Bonis) in an anonymous way using your account

We inaugurate two new plans for our special patients, so by the moment you can choose to have:

• Free Keyose Account: For every one! Basic PHR and upload of 2 medical images.
• Premium Keyose Account (for only 0,92€ per month): For those with an intensive use of Keyose or some chronic conditions. The free privileges and also 50 Mb of medical images and access to our exclusive health-tracking tools (hypertension, diabetes and obesity).
• Gold Keyose Account (for only 2,92€ per month): For those who value the human touch!. The premium privileges and 1Gb of medical images storage. Acces to the health-tracking tools and most importantly the possibility of posing medical questions anonymously to a family physician.